TCSF 3rd Annual VIRTUAL Run, Roll, and Stroll

Virtual, MO

Join TCSF’s 3rd Annual Virtual Run, Roll, & Stroll Walk, run, roll, or stroll 5K (3.1 miles) or 1 mile anytime, anywhere between October 1–31, 2026 in honor of the SCN8A community! This virtual race connects participants worldwide while raising funds for The Cute Syndrome Foundation (TCSF), a nonprofit dedicated to SCN8A awareness, research, and family support. Registration - $10 USD includes: entry, donation to TCSF, printable race bib, and a virtual finisher badge. - Shirts & merch available separately in our Bonfire Store! Why a Virtual Race? SCN8A is rare, and families are spread across the globe. A virtual event allows affected individuals, families, friends, researchers, care teams, and communities to join together from anywhere, anytime - whether in your neighborhood, favorite trail, or even on a treadmill. What’s Included -Donation to The Cute Syndrome Foundation -Printable race bib & finisher badge: self-report your time for 5K or 1 mile on RunSignUp -Chance to win TCSF swag in three categories: fastest participant, biggest fundraiser, and most spirited photo Make It Fun - Invite friends and family to join you - Dress in purple or race gear and share photos - Create a team and raise funds for TCSF! Fundraising You can set up a personal or team page during registration. Teams are a perfect way to celebrate a loved one, rally friends and family, or participate as an organization. Share your link with friends and family to boost awareness and support! About SCN8A SCN8A is a gene that helps regulate brain cell function. Variants can cause severe challenges, including difficult-to-control epilepsy, developmental delays, movement disorders, feeding and respiratory issues, and more. Symptoms usually appear in infancy or childhood and typically last a lifetime. There is currently no cure for SCN8A-related disorders. Why Support TCSF? Since 2013, TCSF has: - Connected with 600 families in 53 countries - Funded $500,000+ in SCN8A research - Provided $55,000+ in patient assistance grants for therapies, medications, and equipment - Awarded $71,000+ in travel grants for families attending the Annual Gathering - Hosted 1 Annual Gatherings bringing families, clinicians, and researchers together - Reached 90,000+ people with this year’s SCN8A Awareness Day campaign - Supported caregivers through private groups, grief recovery, and life coaching - Built community through local Cute Connections meetups - Honored the memory of SCN8A angels Your participation makes a difference. We are stronger together!